If you are reading this letter, it is most likely that you or a loved one is expecting a baby who has Down syndrome.
Finding out that your baby is going to have Down syndrome can be a very emotional and confusing time. Please know that you are not alone! Many of our families have been through the experience of receiving a prenatal diagnosis, and they stand ready to share with you.
The Connecticut Down Syndrome Congress (CDSC) supports new and expectant parents through our First Call program. Trained volunteers are located all over the state and will talk with you over the phone or meet with you in person at any time during your pregnancy. We offer emotional support, information and as much continuing connection to our community as you need.
It is not our place to offer advice to expectant parents regarding their pregnancy and choices, but rather to offer support through our personal experiences. Specific medical questions or advice is something that should be discussed with your doctor.
There are nearly 3,000 families in the State of Connecticut who have children with Down syndrome. Many have joined together through the CDSC to find answers and comfort, and to explore all the possibilities life has to offer their children. We welcome you to our community with open arms — you can contact us by calling 203-351-1157 or toll-free, 888-486-8537. Simply leave a message that you have received a prenatal diagnosis and a First Call volunteer will return your call within 24 hours. You can also reach us by email at firstname.lastname@example.org. In the mean time, take a look at our video below.
We also invite you to read some of our prenatal stories. We think you will see each one as unique, but all as surprisingly similar.
For those who are seeking information about adoption, the Down Syndrome Association of Greater Cincinnati supports the National Down Syndrome Adoption Network, which has a waiting list of more than 100 families waiting to adopt a child with Down syndrome.